CLINICAL TRIALS
Organizations
Gubernamental Organizations
- COFEPRIS
- ANVISA
- DIGEMID
- INVIMA
- Ministerio Salud Costa Rica
- Portal da saúde
- Food and Drug administration (FDA)
- La Administración Nacional de Medicamentos, Alimentos y Tecnología Médica (ANMAT)-Argentina)
- World Health Organization
- El Centro de Información sobre Enfermedades Genéticas y Raras del Instituto de Salud Norteamericano (NIH-ORDR)
- Climb National Information Centre for Metabolic Diseases
- Clinical trial Gov
Non-gubernamental Organization (ONG) And Foundations
- AFANTI
- APMPS
- Fundación Geiser
- Instituto Genética Para Todos (Prof. Roberto Giugliani)
- Casa Hunter
- Children living with inherited metabolic disorders (CLIMB), Inglaterra
- Fundación de Endocrinología Infantil (FEI)-Argentina
- The portal for rare disease and orphan drugs (Orphanet)
- Asociación de Fenilcetonuria de Argentina (FENI)
- The National Urea Cycle Disorders Foundation (NUCDF)
- Instituto Canguru, San Pablo, Brasil
- Fundación Ecuménica de Proteccion al especial (FEPE), Curitiba, Brasil
- National Organization for Rare Disorders (NORD)
- Rare Disease Europe (EURORDIS)
- Rare disease network, USA
Medical Association
- Sociedade Brasileira de Triagem Neonatal e EIM
- Sociedade Brasileira de Genética Médica
- Genética Médica 2017
- ICIEM 2017
- Society for Inherited Metabolic Disorders (SIMD)
- Society for the study of inherited metabolic disorders (SSIEM)
- Sociedad latinoamericana de Errores Innatos del Metabolismo y Pesquisa Neonatal (SLEIMPN)
- Sociedad Latinoamericana de Oncología Pediátrica
Medical Center in the Region
- HCPA
- Hospital de Pediatría Prof. Juan P Garrahan, (Buenos Aires, Argentina)
- Hospital de Niños Sor María Ludovica (La Plata, Argentina)
- Hospital de Niños Dr. Ricardo Gutiérrez (Buenos Aires, Argentina)
- Fundación para el Estudio de las Enfermedades Neurometabólicas (FESEN), (Buenos Aires, Argentina)
- Hospital de Niños de la Santísima Trinidad, Córdoba, Argentina
- Fundación para combatir la leucemia (Fundaleu), (Buenos Aires, Argentina)
- Hospital Universitario Austral, (Pilar, Buenos Aires, Argentina)
Medical Journals
Internal Medicine
Metabolism And Genetics
- Molecular genetics and metabolism
- American Journal of Physiology, Endocrinology and Metabolism
- Endocrinology
- European Journal of Endocrinology
- Metabolism
- Journal of Clinical Endocrinology and Metabolism
- American Journal of Medical Genetics
Oncology
- Lancet Oncology
- Journal of Clinical Oncology
- Ca-A Cancer Journal for Clinicians
- Journal of Hematology & Oncology
- Journal of Pediatric Hematology/Oncology
- Hematological Oncology
- Critical Reviews in Oncology/Hematology
